Here is my blog/journal/rant. Whatever you want to call it.
The title of this may not be very intreguing but it is to me.
I have just graduated from The Auckland Regional Pain Services (TARPS) 3 week Pain Management Programme (PMP). For the first time in 2.5 years there is a name to the chronic pain that I have been living with. That name is Central Neural Sensitisation Disorder. And yes, it is as bad as it sounds. Finally though it has a name. As weird as it is, that makes it slightly easier to live with and explain to others.
Basically what it does mean is that the nerves in my body have become hypersensitive as a result of three injuries in a rather rapid succession. Its not something I would wish upon people, more wish that they have at least a very basic understanding of it.
Hi Mel,
ReplyDeletemy 10yr old daughter has just been diagnosed with this condition. She has been suffering since August last year. Would love to hear more about how you are coping with this. We just had an appointment today with the pain clinic at starship with a team of people.
Hi, I have just found this blog and notice that it is more than a year old. I was wondering how your daughter was doing now? My 14 year old daughter was diagnosed with this condition at Starship a couple of months ago and is really struggling with her pain and nothing seems to help! Do you have any advice or discovered anything that helped? Hypnotherapy for example?
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